Our Diagnosis

Originally a CaringBridge post. Link to original post is the date. 

Jun 20, 2015 8:26am

We will be welcoming our baby girl around the beginning of December 2015. On May 26th, at 12 weeks and 5 days we went in for an NT scan. This scan is typically to determine if a baby has Downs syndrome or a different type of birth defect. We found out our precious girl will be born with anencephaly.

Anencephaly is a Neural Tube Defect (NTD) that occurs during gestation days 23-26. This is where the tubes don’t close properly, this prevents the normal development of the brain and skull. Basically this means our baby will be born with little, to no brain matter or skull. This type of defect is classified as “not compatible with life”. There’s a high chance of miscarriage at anytime. It also means that what little time we do get with her, if any, can vary from minutes, to hours to days and even weeks. No one knows for sure until it actually happens.

Our options were to terminate or carry to term. We’ve decided to carry to term or as long as we’re able. In this time we’d like to celebrate her life as much as possible, even if it’s only in the womb. Obviously this was a huge shock to us as this had never crossed our minds when going in for that scan. We are still trying to process and come to terms with what is and will be happening.

We will be updating throughout the pregnancy on here and our facebook pages. Feel free to ask questions, but please be gentle as this is still extremely difficult for us. As was stated before, we want her to be celebrated like any other baby deserves.

If you’d like more information, this site is recommended, http://anencephaly.info

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